Quick Update ♥️

We will share a longer update soon once we get settled, but long story short - on Wednesday Frankie got a call from her doctor that they found a blood clot in her heart on the pet scan and that she needed to go to the ER immediately. They take blood clots very seriously so she was then admitted into the hospital and we spent two nights there. After a ton of tests, they confirmed a thrombus (a blood clot) in the right atrium in her heart. They believe it happened likely because as someone with lymphoma you are a lot more likely to get blood clots plus they think the catheter from her port was rubbing against my heart chamber. So, she didn’t get treatment this week, she was put on blood thinners, and next week she will actually get the port removed. In the midst of this crazy news and the updates about her heart, we also found out that her PET scan shows she’s in complete remission!!! Also very unexpected and contributed to this crazy emotional roller coaster. Sadly, all the heart news took away from the magnitude of this positive news, but we know it will start to sink in more as we get settled back home and the heart issues feel managed. She still has 4 rounds of treatment left (2 of chemo and immunotherapy and then 2 of just immunotherapy). As the doctor put it yesterday, remission means there is no more visible cancerous cells appearing on the scan but the additional rounds of treatment are done to get her closer to being “fully cured” which can sometimes take years to get to. So, definitely not completely out of the woods yet and still have a lot of challenges to overcome but this is obviously a huge deal and milestone to get to. As you can imagine these last few days have been a lot…thank you so much for all your well wishes and messages. All in all, the pet scan is showing a really promising response to the treatment, and we feel very confident she has a good path forward for managing this new complication.